Update

So here is a quick update on Sophie. She is still at Primary's Children Hospital, not quite sure on how long we will be here. She has tons of tests done so they can try and figure out what is wrong. We have two lung specialists who are husband and wife, we have a team of 3 doctors who are also working with her. So she had an echo done on her heart, it showed that her heart was fine, which is a relief. Yesterday they did an bronchi scope, which means they went done her airway with a scope and then took some of the fluid that is in her lungs. The tests for that have all come back negative. She also had a cat scan on her lungs and a live x-ray where she swallowed some chalky stuff and then they watch it go down, the point of this is that they wanted to see if there are any tears or holes in her esophagus. All of those tests can back fine. Sophie has all the doctors a little stumped as to what is the matter. Obviously there is something wrong, she can't be without oxygen and she breathes really fast. So the lung specialist wants us to try a acid reflux medicine to see if that will help with the liquid in her lungs. Also they are going to start a short trial of steroids, to see if that might help her breathing and maybe develop the lungs a little more. SO that is where we are at right now, if this stuff doesn't work we (meaning Damon and I plus doctors) will start discussing doing a lung biopsy. I'll keep you all updated, sorry no pictures, I've been a little pre-occupied :).